Hi everyone . I have just started chemotherapy ( which will be followed by radiotherapy ) . My tumour is inoperable but so far no spread .
i am taking oxaliplatin to reduce risk to my ears from other platinum based drugs as I have existing ear problems from long covid . Has anyone had oxaliplatin and had ear problems as I am very frightened about this .
also any other side effects . I had a cannula rather than a picc line so I would look less medicalised to my son and had terrible burning and numbness down my arms
Hi MarshaEd and a very warm welcome to the Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.
The New to Community is like our reception desk where we look to try and direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms)…… but I can see that you have already joined our dedicated Oesophageal Cancer support group. This will be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link 
…… then once the group page opens you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page and putting
You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
