Need to know

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My partner had to go to a&e on the 13th march with suspected gallstones, 14th march did a ultrasound scan and no stones so admitted him onto a ward etc so sent him for a CT scan on the 16th, had the results within an hour and his appendix had burst so had the op on the Saturday night to remove them but before he went for his op the dr came and told him they had found something else on his scan something called a “squiggle” whatever that means and she didn’t believe holding anything back from anyone. My partner is 35 now and had testicular cancer when he was 21 so he asked her straight is it cancer and she said she couldn’t say. Fast forward to before he went down for his op on the Saturday night the dr has come back and told him it looks like a “mass or a cluster”. We’ve now found out from his discharge letter it’s a lesion near his left kidney with a question mark. He’s been referred to urology mdt and now today had a letter saying he’s got a telephone consultation next Thursday 28th, he had another letter saying he’s got to have a ct thorax now but what possibly for? He’s had the telephone consultation today and they still don’t know other than telling him they were concerned about it that it could of come back or could be scar tissue as he had to have lymph nodes removed from his abdomen when he had the testicular cancer but they’ve also said on the phone today go for the ct thorax scan still but it will get sent to Birmingham queen Elizabeth hospital as they are specialists? He did also have his testicular cancer treatment at that hospital too, anyone had similar or know anything about that hospital? 

  • Hi  and a warm welcome to the Online Community but so sorry to hear about your partners ongoing diagnosis. 

    A diagnosis journey can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.

    The New to Community is like our reception desk where we try to direct you to the best part of the Community for you to get support.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms)……… but as you have no idea if this is cancer or not it’s hard for me to direct you to the best group….. but if cancer is found you can have a look through THIS LIST where you will find all our dedicated cancer support groups listed…… it’s so important to get the right group as not all cancers react in the same way.

    These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same journey.

    Have a look through the LIST above and once you find the support group for your partners cancer type....... click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [ + ] in the top right of the group page and putting

    As for the practical and emotional challenges of supporting your partner you may benefit from joining and posting in our….

    Carers only 

    ….. support group where you will connect with others navigating the same support challenges.

    During this waiting period you may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support or just a listening ear.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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