Hello all
I’m sorry that we all find ourselves here. I’m 55 with a wonderful 13 year old daughter who has withdrawn into her phone and social media even more so since my recent diagnosis.
I have inoperable stage 4 pancreatic cancer and my prognosis is about 9 months.
With such a short time to live I want to spend time talking to her and doing things like we used to but I don’t know how to separate my daughter from her phone without her resenting me. She is no different to her peers in wanting to shut herself away with her phone but soon it will be too late.
Any observations on palliative chemo would be appreciated too!
Thank you
Hi Frabbit and a very warm welcome to the Community but sorry to hear about your diagnoses and the challenges you are facing.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms)….. I do see that you have joined our dedicated pancreatic cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link
You may also find it helpful to join our Living with incurable cancer - incurable patients only (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)
…… then once the group page opens you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
We have info pages about Talking to Family & Friends about Cancer and Talking to Children and Teenagers about Cancer
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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