Hello everyone 
Today is my first day on the forum, I have recently been diagnosed with Myelofybrosis, I have just started treatment today to help with symptoms, unfortunately there is no cure so it’s taking me some time to process and come to terms with my diagnosis and the life limiting aspect of this rare blood cancer 
I am a mum to a lovely 12 year old boy and if I’m being honest not being here for him is what terrifies me the most, I feel really scared and isolated as I don’t want to share my fears with my husband, family or friends most of whom I’ve not told yet. I’ve registered on the blood cancer.org site but haven’t found anyone to connect with yet that has the same cancer as me, finding someone else who has experience in this cancer and the treatment Ruxotilinib would be invaluable but I would also be grateful for anyone’s feedback who may have a different cancer but can understand this overwhelmIng fear at the start, it’s also challenging for my husband and I at the moment to accept this as we have just lost my mother in law in the last two weeks to cervical cancer after a short and aggres
ve battle with her illness Reaching out in hope of some friendly advice x
Hi MrsS831 and a very warm welcome to the Community but sorry to hear about your MF diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.
I was diagnosed way back in 1999 at 44 with another very rare (1 in a million) type of blood cancer but I turned 68 last Nov and I am still living a great life…… so be encouraged.
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated ET Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link 
MDS/MPN/ET/PV/myelofibrosis (MF)
…… then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
Thanks so much 
