I’m recently diagnosed with this 3 weeks ago and am having treatment with subcutaneous injections. The whole thing is still overwhelming really, and trying to obtain an outlook.
Hi Edwarpg and a very warm welcome to the Community but sorry to hear about your MDS diagnosis.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms)....... but I do see that you have posted in our dedicated MDS/MPN/ET/PV/myelofibrosis (MF) support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and most centres run a dedicated Hematology Support Group.
Do get back to me if you need further help navigating the community.
