I have been dealing with cancer for 12 years but have just discovered the Macmillan Community and I am seeking a number of things: My NHS treatment staff are OK but busy and very light on providing information. In fact my oncologist thinks that patient contact forums create rather than solve concerns!!
Being a trained biologist I want to know all the detail. I realise that not every patient wants this, but many do. I have been in contact with Melanomamates and it is interesting and helpful but the sheer numbers of unclassified enquiries and responses makes it difficult to get response after an hour or so. This classification system seems better to identify common interest.
Had kidney cancer in 2012 but after nephrectemy I had no reoccurence. In 2018 I had a melanoma removed from chest. In 2019 this reoccured as Stage 4 with tumours in armpit, spleen and lung. First immunoltherapy and then targeted therapy (Enco/Bini) for the last 4 years has kept this at bay. Live from scan to scan.
Pleased to receive any guidance
Hi Redimp and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
As the online community is divided into different support forums I'm going to recommend that you join us over in the melanoma forum which is a great place to ask questions, share experiences and give and receive support
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
