Hi there,
I did a bowel screening test mid December, unfortunately it cameback with blood in my poo, fast fwd to mid Jan and a colonoscopy and ctc scan that revealed bowel cancer with secondaries in the liver, i had an emergency op to remove tumors in the bowel,and having my appendix removed also,again unfortunately,it didn’t quite heal properly so I had to have a 2nd op a week later resulting in now having a stoma,which I’m actually quite proud to have in a weird way, and ask people if the want to see my bag, which so far everyone has, which in a way has helped me with accepting it as part of me, I had my meeting with the oncology department a few days ago and found out that although my liver cancer isn’t curable it is treatable, to be honest at the time I just heard the “not curable “ bit and switched off for a bit, I’ve been told that my treatment with chemo, will involve one session of an infusion followed up by sessions by tablet form, then a break ,then repeat.I would appreciate any feedback from anyone with any experience of this as I am finding it quite daunting , I do realise that everyone can have a reaction unique to them,
Hi DavyG and a very warm welcome to the Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer although I have lived with and been treated for my incurable blood cancer for over 24 years including over 800hrs of chemo)
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in some of our dedicated support groups. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with these group click on these links
Bowel (colon and rectum) cancer
Ileostomy, colostomy and stoma support
…… then once the group pages open click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
Hi Mike, thank you so much for this advice, you’re a star,
regards Davy
No problem DavyG you will find some great support in the groups - all the very best
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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