Hi Guys,
i've been diagnosed with the above diagnosis following
chronic headaches. Out of control high platelets,
an MRI confirmed multiple brain blood clots/bleed.
Then I had a stroke...
I opted for Interferon injections (plus apixaban) but am
seriously depressed & wondered if anyone had tried any
Curious to know if anyone has any advice to help with pain.
I live alone & the recent shortage of pain meds have
meant a brutal few weeks of no sleep plus not being able
to eat or drink & what comes with that! Thinking of withdrawing meds...treatment
is for life. I must read more blogs, horrendous
adversity for some people!
Hi Yvarnaand a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
As the online community is divided into different support forums I'm going to recommend that you join the MDS and MPN forum as you'll then connect directly with others who have had a diagnosis of ET.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
