Hi All ... I was diagnosed with ET, late last year ... my bone marrow over produces Platelets due to me having the JAK2 genetic mutation. I started Hydroxycarbamide treatment at the beginning of January, and after a month, platelet count has reduced ... So going forward, will be tested on a regular basis to determine the optimum dose. So far, touch wood, no side effects from the meds. I am still rowing, cycling and walking with the emphasis on "take it easy!!!" ... I start slowly, and when I have warmed up, I back-off a bit, and I have my pace 
Hi AJP57 and a very warm welcome to the Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have been living with a completely different rare type of blood cancer ) for over 24 years..
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated rare blood cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link>
MDS/MPN/ET/PV/myelofibrosis (MF)
…… then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
lDo get back to me if you need further help navigating the community.
