After CT & MRI scans my family were given the devastating news that our loved one has 9-15 months to live.
I’m not the main carer however want to support those that are.
My loved one has no memory, and therefore those that have power-of-attorney are making decisions for them - such as not to get a second opinion and not to go ahead with radio/chemotherapy - it’s difficult for me to accept as I’m very much wanting to fight (or get a second opinion at least).
We are trialling medication to get a balance with regards to steroids for swelling on the brain and also for anti seizure medication - My loved one has horrific mood swings at the moment.
I guess I’ve come here to see if anyone else has had a similar experience and (I know every person is different) what might be expected going forward?
I don’t think we’ll get any financial benefits/support with care but if there is anything that anyone can recommend that Devon County Council can offer/things we can ask the GP/support groups etc.
My family are new to this so at the moment we’re feeling very lost!
So sorry to hear of your news and must be so terrifying for everyone, sending you lots of hugs and positive vibes your way
Hi Cornish_Maid and a very warm welcome to the Macmillan Community but sorry to hear about your loved ones diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot (I have a totally different type of cancer)
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms)….. but I do see that you have already joined our dedicated
support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your loved one and indeed all the family you may benefit from joining and posting in our
and
Supporting someone with incurable cancer
support groups where you will connect with others navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Do get back to me if you need further help navigating the community.
