Hi
My mum was diagnosed with stage 4 ovation cancer in October. At the point of this diagnosis she was so poorly with fluid build and the spread of her so called (dandelion) myself and my sisters went to auto pilot to get my mum through this period of time before her chemo started.
She was hospitalised and started chemo which unbelievably made her well! No real side effects, it was amazing we had our mum back.
Now having had major surgery where we were told she was extremely high risk for this surgery and he made me feel at the apt fir fitness, that she wouldn't make it. Her 7 her surgery was the worst 7hrs of our lives. My "iron lady" mum made it through with flying colours.
I took control of all her appointments took her relayed the info and was adamant I could do it all.
My mum is doing so well, but even if the cancer disappears it will return.
i feel sad, frustrated, holding on for dear life of everything so not to lose control. My fear of her not being here is immense and makes me feel that I have to be there at every moment possible and I am terrified.
It feels like we are on this rollercoaster.
Hi Snowball13 and welcome to the Macmillan Community but so sorry to hear about your mum’s diagnosis and the journey you have all been on…… and I have to say that you have been an amazing support for your mum.
A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your mum and indeed yourself you may benefit from joining and posting in our….
and
Supporting someone with incurable cancer
…. support groups where you will connect with others navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Please do get back to me if you need further help navigating the community ((hugs))
