Hi everyone, I have had a rollercoaster of a past few months. Pre cancerous cells in my womb and a large cyst on ovary. Extensive bleeding with clots for years.
Was booked for hysterectomy today but got my results back of smear and now that has been postponed till further notice, have found very serious more than severe High grade dsykaryosis CIN3 and High Hpv positive. Consultant wanted to make that very clear it was very very severe so very concerning.
Colposcopy done today and biopsy. What she saw during colposcopy she was not happy with, she said it didn’t look good. Very concerning for her. Waiting to find out what is happening and whether it has moved to cancer, or just still borderline and needs to be removed asap before it does. Consultant also discussed procedure through cancer route and was very honest and open with me. Past few months have just been traumatic for me. Just need to talk to people going through the same sort of thing. Give me advice.
My surgery will go ahead sooner or later but will change to a radical hysterectomy as needed to remove all the nasty stuff if turns out to be be borderline.
not sure if this is where I should be posting.
Hi Megs23 and welcome to the Online Community but so sorry to hear about your ongoing diagnosis.
Navigating a diagnosis journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' journey can help a lot.
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so if you care to have a look through THIS LIST you will find all our many dedicated cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the same journey.
Have a look through the list I have given you above and once you find a group that you may find helpful you can join the group by selecting “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Hi Megs23 and welcome to the community.
In addition to the advice you’ve had from Mike, can I suggest that you join the Cervical Cancer group, given that you have had a diagnosis of HPV/CIN3 and have had a colposcopy as you can connect with others there who have been through similar, and also been through radical hysterectomies.
You can join the group by clicking on this link-
Sarah xx
