Recently diagnosed with metastatic liver cancer

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Hi there 

It’s taken me almost a month for my diagnosis to sink in, actually I’m still not sure if it ever will! 
I’m 43, married with 2 beautiful children and it’s come as a huge shock to everyone! 
Started off with pains in my side and then within a few weeks and numerous tests, here I am with a bowel cancer diagnosis that has spread to my liver! 

Just waiting for a call for the picc line to be inserted and then I start my Folfirinox journey! Not sure what to expect or how to navigate this! 

  • Hi  and a very warm welcome to the Community but so sorry to hear about your new diagnoses.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).

    The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Bowel and Liver Cancer support groups. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group click on this links >

    Bowel (colon and rectum) cancer

    and

    Liver, secondary cancer (that I do see that you have joined)

    then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi there,

    I just wondered how you got on with your picc line and Folfirinox?

    Thanks

    Corrina