Newbie, autistic and scared

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Pls be kind, this is all very new to me and frankly I’m petrified. I’m desperate to find other autistic womxn who are in or around their early 40s who can relate to this or similar (not that I know what similar looks like, I’m that new to this):

Small patch under nipple went from sore to uncomfortable to painful.

GP examined and found lump.

Hospital did mammogram, ultrasound and physical examination; found enlarged lymph nodes in armpit.

Biopsy showed cancerous cells.

Now going through more tests; MRI, CT and bone scan.

Won’t know results for another couple of weeks.

I’m scared. I don’t know what to do or what to think. I’ve been told breast cancer can come or show in more than one form.

I’m late diagnosed autistic, I’ve not found a support group specifically designed for autistic (or neuro divergent people in general) and the big C yet.

All I want to do is withdraw between tests. And the waiting is doing my head in: my patience jumped ship the moment the word cancerous was heard.

I was already trying to navigate burnout amid my other responsibilities - so I felt the weight of this news. The uncertainty of what’s to come is severely disrupting and impacting upon everything. I don’t have an autism support dog yet either.

If you are like me, pls respond.

  • Since there was no point to aim at, then "No you didn't miss it".

    Plus the only help I am currently looking for is to meet and converse with willing individuals already in the later stages of Caegory 4 melanoma, so I may know second-hand what is ahead. But apparently that is unachievable for reasons that are never explained.

    I would advise you to never take "no" for an aswer to your request for your own information - I always seek a higher level of decision-making until I get someone with the intelligence and humanity to say "yes".