Neuroendocrine lung cancer

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  1. My mom has very recently been diagnosed with large cell neuroendocrine lung cancer which has spread to her spine. Had one round of chemo, reacted well but on day 14 pain unbearable by day 21 had a bad fall ended up in hospital with acute pneumonia. 
    pleaded for us to get her out of hospital now caring for her 24/7 as a family. 
    help is very slow, been refers to lots of different people but need support urgently 
  2. pinning all our hopes on pallative consultant tomorrow.  What should we ask? 
  • Hi   and welcome to the Macmillan Community but so sorry to hear about your mum’s diagnosis.

    A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.

    The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your mum and indeed yourself you may benefit from joining and posting in our 

    Carers only 

    and

    Supporting someone with incurable cancer

    …… support groups where you will connect with others navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Please do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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