Hi have been diagnosed with Neuro endocrine cancer which was found after I had to have an emergency bowel operation to remove a blockage. Had an hour scan last week and am waiting to hear if it has 
read. I had never heard of this particular cancer and wonder if anyone on this site has had it and if they got through it. Went to our local world cancer day event today and they didn’t have any infon this snd are in the process of getting me a booklet. Any advise would be great as I understand that this is a rare type of cancer.
Hi Lillian Frances and a very warm welcome to the Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you initially join and post in our dedicated Bowel (colon and rectum) cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link > Bowel (colon and rectum) cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using) When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
From what I can see, Neuroendocrine Tumours can turn up in various places so once you get your full results you may is required need to look through THIS LIST you will find all our many dedicated cancer support groups listed.
I did a search of the full site search using the search tool 
near the top and found a few mentions so have a look through the site.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
