Spindle cell sarcoma metasised to lungs

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Hello all, 

3 weeks ago I had a proximal femoral and hip replacement due to a grade 3 sarcoma growth on them. The op was a success but I've been told that it has metatised to my lungs. I know what is on my lungs will never be gone and I am due to start chemotherapy and radiotherapy in a few weeks. I know the treatment won't cure me but was wondering if anyone had any experience or knowledge of how the treatment may slow things down as I can't bear the thought of not being around for long as according to the dreaded Google searching, the outlook isn't great, even short term. Thanks for reading. 

  • Hi  and a very warm welcome to the Community but sorry to hear about how your journey has developed.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).

    The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Secondary Lung Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group click on this link > Lung, secondary cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    You may also find our Living with incurable cancer - incurable patients only support group a helpful place to join (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thanks a lot for your guidance Blush