My 39 year old daughter had a lumpectomy in August for lobular breast cancer. The sentinel node was clear and the Oncotest score was 10, so no chemo. Had radiotherapy and now on Tamoxifen. 4 weeks ago started with pain in upper right abdoment which has spread to her back and now shoulder. A ct scan on Monday has revealed tmours on her liver, biopsy due on Monday. Complete and utter disbelief that it could have spread after no sentinel node involement. Even the hospital dont understand. However, she initially went to the hospital with a lump over 2 years ago and was casually tolds its 'looks' like normal breast tissue because wasnt a stand breast cancer lump and she was sent away, this year , pver a year later the same area had grown and hardened and now disgnosed with lobular. The original ultrasound scans have been lost so there is no way to make comparisions. We now feel that the original visit to the hospital was dismissed because it didnt fall into the classic breast cancer lump category. She is now 39 so was 37 when she went initially. Was something missed?? Where are the original scans?? can metastic cancer appear so soon after the lumpectomy in august and radiotherapy in September. It just does not make logical medical or scientific sense. She is a professional medic single mum with two children 9 and 11.
Please please somebody help me make sense I am in despair.
Hi Scared mum for daughter and a very warm welcome to the Macmillan Community but sorry to hear about your daughter’s new diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot (I have a totally different type of cancer)
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Breast cancer and Breast, secondary cancer support groups.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your daughter you may benefit from joining and posting in our support group where you will connect with others navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Do get back to me if you need further help navigating the community.
