I was diagnosed with womb cancer in December, after having a CT Scan, it doesn’t appear to have spread, so I will be having a full hysterectomy and pelvic lymph nodes removed. This is the first time I have come on here to ask advice, my reason being, I felt my cancer is not as bad as others, so didn’t feel important enough I suppose. However coming back from the hospital today, I didn’t see the same consultant I have seen previously and found this one abrupt and left me with more questions than answers. I know they deal with this day in and day out but I felt like I was just a number to him. Am I just being over sensitive? Everyone’s situation is different, family life, illnesses and mental health but he wasn’t interested in the least. There is only my daughter and I at home and she’s my carer, however she has Autistic Spectrum Disorder and crippling anxiety, not only is she terrified of loosing me but also looking after me after my operation, especially after listening to all the problems that may occurs, being rolled off quickly by this consultant. How can we deal with this ? Who do we turn to for support ? Especially for my daughter incase she becomes overwhelmed with it all. We have always just had each other, we shut ourselves out from the world and coped with whatever on our own, but I fear this may be bigger than both of us. I just don’t know what to do or where to turn, so any advice would be greatly appreciated, thank you
Hi DebsGJ and a very warm welcome to the Community but sorry to hear about your diagnoses and the journey you are on.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Womb Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Womb (uterus) cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
I have given you a lot of channels to get supporter, but do get back to me if you need further help navigating the community.
