Hello all,
I am new to the community. I had a partial hysterectomy in 2018 following years struggling with ovarian cysts, endometriosis, adhesions. I had breast cancer which was successfully removed via wide area excision in 2019.
In the last 18 months i’ve had repeated UTI’s and urinary symptoms (urgency/ frequency). I attended A&E with pain in my abdomen and back and was examined. Further investigation was requested via GP. I recently had a Ca-125 test which was not above the level for immediate concern. TVAS and Ultrasound have been requested, but no apt yet. I am experiencing swelling in my abdomen, sharp constant internal discomfort, frequent urination, some constipation, nausea, not wanting to eat and tiredness / insomnia.
With holiday’s approach I am unsure whether to just wait (as my GP has acted quickly this week to request tests) for next steps or try and seek help from A&E. I know my symptoms are aligned with Ovarian Cancer and am scarred. First GP apt I can get is in 11 days.
Apologies for long message, but any advice is welcome.
Hi Saki and a very warm welcome to the Community but sorry to hear about your concerns.
As you already know the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot.
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Ovarian Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Ovarian cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Do get back to me if you need further help navigating the community.
