Hi, I’m new to this but my husband has acute myeloid leukaemia, dementia and yesterday fitted with catheter, I’m sat writing this because I’ve given up trying to sleep since 2.30 , now I’m up he’s fast asleep I just feel I can’t do this , his wishes are to die at home, I’ve been told we’re near the end but I need my strength for daytime, he has no idea how poorly he is, anyone else going through this ? I know there are probably thousands but it’s so hard
Hi Kizzi and welcome to the Macmillan Community but so sorry to hear about your husbands diagnosis and the challenges you are dealing with.
A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot ( I have cancer so it’s best you connect with other carers)
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting your husband you may benefit from joining and posting in our Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Do get back to me if you need further help navigating the community
