Cancer journey continues....

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Hi everybody, 

New to the Online chat, so Hello Wave 

3.5 years ago ages 52.  I was diagnosed with bladder cancer, I now find myself  having had 4 reoccurrences, 2 rounds of chemotherapy and 4 removal operations,  having a bash at immunotherapy treatment Grinning 

This week I'm at 50%  of the initial 6 weeks loading program and just had the news they have also now found an area of concern in my right lung, so CT scan booked in for that... oh deep joy 

The team have been brilliant,  care has been fantastic , but it's always good to talk ....so here I am Laughing

For me , staying positive and as active as I can , has always been my go to.

  • Hi and hello to you  and a very warm welcome to the Community but sorry to hear about your diagnoses but good to read that you have a positive approach to your journey - this helps a lot...... this has been my go to for over 24 years with my incurable cancer.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).

    The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Bladder Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group click on this link> Bladder cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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