Hi.
My mum was diagnosed with lung cancer back in February, after numerous complications and general hiccups, she's also been diagnosed with Glioblastoma brain tumour.
Last week she was supposed to start her Chemo Tablets, but due to generally feeling unwell she decided to put a stop to all treatment.
She's told the nurse this evening, she wants to try again with the chemo tablets.
My life has turned upside and I'm so confused!!
Is this possible???
Hi LozMa and a very warm welcome to the Macmillan Community but sorry to hear about your mum’s diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot (I have a totally different type of cancer)
The Community is actually divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our Glioblastoma multiforme and Lung Cancer support groups.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your mum you may benefit from joining and posting in our Carers only support group where you will connect with others navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Do get back to me if you need further help navigating the community.
Hello Lozma I'm really sorry to hear about your mum. From someone who lost their mum to lung cancer which was not treatable i would say yes as there has only been a weeks delay. As thehighlander says cancer brings out every emotion you can imagine, Although we do not know the details of your mums diagnosis we know she would only be put on this treatment if your oncologist believes it will benefit your mum. I tried many times to get treatment, any treatment for mum even though i knew deep down it was futile, but she was my mum and i had to do something. Lozma if your mum wants to try, go for it, please take care, Eddie
Hi Eddie.
I'm sorry to hear about your mum. Thank you for your kind message, it's really helped focus my mind on what to say to mum.
We'd been told previously that due to the radiotherapy and Chemotherpy being to invasive they'd try the chemo in a different format and suggest the oral tablets. They'd given mum the prognosis of 6-12months with treatment.
I turn 30 in April and I really want my mum to experience as much of me and my life as possible. I guess I'm just not ready to let go of my best friend
X
Morning LozMa, and thank you and If i have helped in any small way it was my pleasure, my mum was my best friend too, and to be told she only had 4 months, well you understand, but LozMa with help from mums two best friends most of what time mum had left were good days, so much better than i could have hoped for, and i believe we even grew closer. LozMa cancer treatment is so much better today and who knows what new treatments may become available, I hope your mums treatment goes well and you have someone to support you. take car,e Eddie
Hello Teggles and welcome to the forum, I am so sorry to hear of your diagnosis and how it is impacting your daughter and you. I noticed you have not joined any forums, Teggles there is the EMOTIONAL SUPPORT and FAMILY AND FRIENDS forums, and the LUNG CANCER forum where you and your daughter may find support, My cancer is terminal and the support and advice i have had from people in a similar situation to mine, who know what i am going through has made a huge difference to me and thousands of others on here, please take care, Eddie
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