Been diagnosed recently with cancer of liver and recieved conflicting reports from Consultants at Hospital This is some what affected due to being ecxcluded from MDT meetings ,it appears that the person is excluyded by the medical model .Feeling ,mental health and clear information re process of any iunterventions and outcomes ., These factors appear to increase stress and mental well being .interested to know how others feel
Hi WOMBAT 232 and a very warm welcome to the Macmillan Community but sorry to hear about your diagnoses and the challenges you are dealing with.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot. (I have a completely different cancer).
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Liver Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Liver cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
Yes the cancer journey can be confusing in many ways……. but do join the Liver cancer group and introduce yourself by putting up a post as this will open you up to support from people who have walked the same cancer journey.
