Thyroid Cancer - starting RAI

Hello there. A few years ago I found a lump on my neck. After an ultrasound I was reassured that it was a (common) and completely normal looking thyroid nodule. Fast forward to 2023, after asking to get it checked again, I was told the appearance of the nodule had changed, and so I needed to have it removed for a biopsy it. However, as I was heavily pregnant I needed to wait. I had my beautiful baby boy, and shortly after having him (when my baby was just 4 weeks old) I had the first op for my hemi-thyroidectomy.  Results from that came back that it was in fact Follicular Thyroid Cancer. I was then in for second operation to remove the whole of my thyroid. I have found the diagnosis a shock and also it's been a complete whirlwind of a year. I'm due to have the next step of treatment - Radioactive Iodine treatment in a few weeks. I wondered if anyone on here has had RAI, how they found it and how life is after the operation(s)/RAI? Some days I'm completely overcome with worry due to the fact I've always been "healthy" - good diet, I have always exercised lots, and I have never had any thyroid issues before. I've found it had to believe & worried my body made and grew cancer cells. I know this is probably part of the process and it'll just take time to trust my body again. x

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that you've been diagnosed with thyroid cancer and it's natural to feel as you do.

    As the online community is divided into different support forums, I going to recommend that you join the thyroid cancer forum as you'll then connect directly with others who have had the same type of cancer to ask questions, share experiences and get support. 

    To join just click on the link I've created and, once you've joined the forum, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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