So far so go

Hi - I am new here - don't really have any idea what to write so thought I should maybe  just tell my story - here goes -

In March 2019 I took myself off to see my GP because I had started to cough up blood and what little I knew I was sure this wasn't a good thing. My GP decided I had Asthma and proceeded to treat me with antibiotics - by late October I think I had been through every type they had on offer to no effect. It was then I suggested that seeing a specialist might be a good idea.

This turned out to be a good move as by mid November I was belly up on an operating theatre table having a third of one lung removed. This was followed a year later by the removal of about a tenth of the other one.

Since then I have received 36 chemotherapy treatments and a dozen immunotherapy treatments. These have now been stopped as they had stopped achieving anything. I was lucky in that I did  not suffer any significant side effects. I am now on a daily dose of Nintedanib which has worked to keep me stable - never will be better but not getting worse which is truly a win. Six weekly clinic appointments and three monthly CT scans help to keep me on track.

I was a heavy smoker but stopped thirteen years ago - I gave up alcohol ten years ago. I am the same weight, at the age of 75, that I was when I left school at fifteen. I eat a healthy diet and avoid processed food as much as possible.

My mind is kept active by still running my technical web site business full time. To keep fit I walk - either outdoors  (on the flat as I find hills difficult) or when wet (or to busy working) on the treadmill. In the past two years I have walked the equivalent of London to New York  and I am now heading for San Francisco Joy.

I get out of breath occasionally - usually because I forget I am old and do things a bit quicker than I should but other than that I wouldn't  know I had lung cancer.

I do consider myself to be very lucky -  I am not prepared to give into my illness - I am determined to keep both my mind and body active and as healthy as I can possibly make it. I do not wake up in the morning thinking oh dear I have cancer - everyday I wake up I have a plan for the day. 

I do believe that I am responsible for motivating myself - I cannot expect others to do this for me. I can't complain that I have cancer given that 50% of the population will get it in their lifetimes. I am very grateful that I have avoided the more unpleasant chemo side effects. I am also grateful that I am able to maintain a good level of fitness.

So all in all I do consider myself to be very lucky.

So that is my story - maybe reading it may help someone, hopefully I haven't written anything that offends or upsets anyone.

  • Crikey - March to October on antibiotics for asthma!  How much patience with your GP is that!!

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    It sounds like you've been through a great deal but I'm glad to read that you consider yourself very lucky.

    The online community is divided into different support forums so I'm going to recommend that you join the lung cancer forum where you can ask questions, share experiences and get support from others who have this type of cancer.

    To join just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile', and to save yourself typing this all out again you could copy and paste it into your profile. 

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  • Crikey - March to October on antibiotics for asthma!  How much patience with your GP is that!!

    I know this isn't the place but I just had to agree....There is something really wrong with a significant number of our GPs. See it in the Head and Neck group too


    Base of tongue cancer. Out of radiotherapy January 2019

    Blog about my cancer. 

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  • Sadly when you are new to this game you do kind of assume that your GP knows what they are doingRolling eyes