Diagnosed 11/08/23. Had lumpectomy and full axillary clearance on 29/09/23 then results 1/11/23. Need to have another surgery as in the margins. And 1/15 lymph node involvement. Just received letter that goes to doctor and there’s a new word on there that I wasn’t told pleomorphic invasive lobular carcinoma. What’s pleomorphic? Just googled. Not good. Now I’m worried and scared. They don’t tell you enough at the meetings.
Hi Kirstymarie and a very warm welcome to the Macmillan Community but sorry to hear about your diagnoses.
Always be careful of googling words or terms, as these all need to be considered as part of a bigger picture and the only people who can explain this correctly are your clinical team....... if you have been assigned a Specialist Cancer Nurse (SCN)....... give them a call.
If I was to google individual terms that relate to my rare type of incurable blood cancer I should have died over 23 years ago.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot. (I have a completely different cancer).
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Breast Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Breast cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
I see that you have already found our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.