Yeah I’m new here too having recently been diagnosed with secondary womb cancer. I’m really interested to learn of other peoples experience with this; like life expectancy and treatment options. Am starting chemo on Monday and will now look for “cold cap” advice…apparently it does not work so well with carboplatin + paclitaxel so perhaps it’s not worth the extra pain??!! I’m hoping that I’ll be able to cope with the side effects well so with every new twitch I’ll be on here for advice.
I’m finding it hard to accept that the doctors do not operate for secondary - its in my lung & omentum (tummy fat). It’s the latter I want gone as it’s “avid”, which I understand to mean actively growing.
Each of us have our story and before I even start I’d like to say I now understand “fighting cancer” and “cancer surviver” like never before so let me just say hero and heroines one and all. We’re stronger together. The doctors gladly have a tried and tested approach but we need each other for the patient led trials of dealing with for example the side effects.
Thanks MacM for all your many & varied helps,
Hi AineMcG and a very warm welcome to the Macmillan Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot.
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Womb (uterus) cancer and Lung, secondary cancer support groups. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link I have posted above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.