Newly diagnosed

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Hello everyone. I'm new here.

I've just been diagnosed with invasive lobular breast cancer in my right breast after a biopsy taken when attending the clinic with an area of thickness near my nipple. Nothing showed on my mammogram in April, so it's come as a huge shock. I don't drink much, have never smoked and run 5k three times a week. I'm 58.

At first they said it was 16mm, and that is have surgery and radiotherapy, but the MRI showed it to be 27mm with another small area near to it which they are going to biopsy. If that's also cancer, they'll say that together that makes a 30mm tumour. They also found cancer cells in a lymph node under my arm.

I'm having a CT scan on Friday evening. I was already terrified and the prospect of the CT scan this is making it worse. I'm convinced they are going to find it everywhere.

I can't eat or sleep. Both me and my husband don't know how to make it feel better. It just seems impossible and so so scary. I'm so scared.

I realise I'm lucky compared to those of you with small children. Both ours are grown, but I feel so guilty for putting everyone through such worry.

Sorry, I'm going on!

  • Hi   and a very warm welcome to the Macmillan Community but sorry to hear about your diagnoses.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot. (I have a completely different cancer).

    The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Breast Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group click on this link> Breast cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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