I have been diagnosed with terminal cancer in bowel liver and blood
i feel fine but husband for whom I was a carer has dementia plus other illnesses and has been put in a home temporarily
I now live alone and. Keith I’m by train
i am waiting for the results of liver biopsy
I had a stent in my bowel as I was constipated but in a month my life and my husband has been changed and we are now apart
I am outwardly pretending to cope and have family living in US Autstralia Singapore and o Dan boys drive away with their own family who contact and are supportve but during the night I feel so alone after 52 years with my husband beside me
lit has all been so sudden
Hi LucyB 48 and a very warm welcome to the Macmillan Community but sorry to hear about your diagnoses.
Receiving a diagnosis like this is a hard place to find yourself made worse by the challenges surrounding your husband. Although my cancer is incurable we have been able to co tool it so ai am not in a position to completely understand the journey you are now navigating but getting support from others who are walking the ‘exact same' journey can help a lot.
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Living with incurable Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Living with incurable cancer - incurable patients only then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
Note - Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community ((hugs))
