Hi from a new member

  • 6 replies
  • 38 subscribers
  • 303 views

Hi from a new member 

  • Hi  welcome to the community. How can we help you?

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • How do you cope with the uncertainty unsure about the future and what that will bring

    Love2023 

  • It’s all down to the context of your uncertainty….. life is full of uncertainties.

    I was diagnosed way back in 1999 at 43 with a very rare incurable blood cancer…… I have had treatment on and off all these 24 years and in late 2013 I was staged at stage 4……. this is now coming up to 10 years now and I turn 68 in a few weeks and am living a great life…… but my cancer is still their but just asleep at the moment  Zzz …… but my focus is on getting g on with living life to the full….. and not continually looking over my shoulder.

    What are you actually uncertain about?…… have you been given a cancer diagnosis?…… are you in treatment?

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hello  

    That's a very difficult question to answer. To enable us to point you in the right direction for some help and support are you able to let us know what type of cancer you are dealing with, is it yours or are you unsure about a loved one's future and at what stage of the diagnosis and/or treatment are you/they at?

    It might help you if we point you in the direction of the Emotional support forum . To join this forum/chat room, just click on the link I have provided, and when the page opens up just click on the black banner at the bottom of the page and once you have joined the forum you can introduce yourself, give a little more detail about the cancer and your feelings and I am sure you will receive some help and support.

    I hope this helps.- Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi my son has just been diagnosed with brain stem cancer.  I feel so numb don't now how to help. All different thoughts going round my head.  

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your son’s diagnosis. 

    A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot (I have a totally different type of cancer)

    The Community is actually divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our Brain tumours support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your son you may benefit from joining and posting in our Carers only support group where you will connect with others navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.

    Do get back to me if you need further help navigating the community

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge