New here and struggling to work out how to use this site! Not very good at technology lol
Ive just been diagnosed with CLL although waiting bone marrow results to make sure nothing else is going as I’m more unwell than I should be apparently. Been off work now since mid September.
was wondering if others with CLL feels really poorly too, I won’t even go to a supermarket on my own anymore and I take a wheelchair with me to be able to stay out longer but anything I’ve googled I can’t seem to find these issues with others that have CLL!
Belinda x
Hi Belinda Blin and a very warm welcome to the Macmillan Community but sorry to hear about your CLL diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot.
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated CLL support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> CLL, SLL and HCL then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
