Just released from hospital with the above diagnosis. I saw my CT scan --- not good with a large volume of peritoneal metastatic disease throughout my abdominal area. I am awaiting biopsy results whose outcome sounds almost irrelevant owing to how widspread this is. I don't know how long I have
Hi Metastases and a very warm welcome to the Macmillan Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot. (I have a completely different cancer).
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Peritoneal support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Peritoneal cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You may also want to let on at our Living with incurable cancer - incurable patients only support group (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
