Please can anybody relate to this ? Has anybody had any long term effects of having the zolphanic acid bone Infusion? Since I had my first one two years ago I've struggled with my lower back and now having lost 4inchs in height it my upper back is rounded and i'm unable to stand straight . My April infusion I feel but the specialist says different , that it has left me with arthritis in my knees and hips , this October one is , om goodness the pain from my spine to my knee's is soul destroying no medication will relieve the pain . If anyone has ideas I would be very welcome !
Thanks in advanvce
Hi Weezer and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read about the side effects you're experiencing with zolphanic acid bone infusions.
The online community is divided up into different cancer specific support groups where you can ask questions, share experiences and get support. If you tell me what type of cancer you're being treated for I could give you a direct link to the group. Alternatively you can look through this list and choose the appropriate group.
Once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
