Hi everyone am new to I the forum ! I have been diagnosed with liver cancer stage 4 after 2 previous breast cancer occurrences in the last 3 years. Devastated and still numb !! am still awaiting full liver biopsy results but not looking good I suspect it’s in the bile ducts too after talking to oncologist professor at clatterbridge but await confirmation of this anyone here had similar ? Liver diagnosed 7 weeks ago then first cycle of carboplatin 1 week later then at 3 weekly rounds so had second chemo yesterday ! Hence the insomnia and being awake at 4 am as he said it’s a strong dose. Feeling the usual tired dizzy aching pains but managing 4/5 litres of water to flush out my body over 24 hours otherwise I don’t pee properly and we need to keep hydrated don’t we ! I think it’s the toxins in the chemo with me. I have noticed others with similar diagnosis are on a couple of drugs together ! But I was told due to me having chemo prior to last Christmas I needed to be on one they had not recently used probably due to its ability to work so this is a strong type
it appears the prognosis and time scales don’t look as good as I expected so I intend to grab what I’ve got with both hands now and embrace all the love and kindness am being given which is pretty hard to do as am usually the one giving all my love away being a Mum and Nana and dog mum. Any similar experiences would be a great help
take care everyone much love
Hi Curlytop and a very warm welcome to the Macmillan Community but sorry to hear about the journey you have been on with your breast cancer and now this.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot. (I have a completely different cancer).
The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Liver Cancer and if required our Bile Duct Cancer support groups. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on these links> Liver cancer and Bile duct cancer then once the group pages open click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You may also want to look at our Living with incurable cancer - incurable patients only Support Group (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
