Waiting for results

Hi Scooter Girl  and a very warm welcome to the Macmillan Community but sorry to hear about your ongoing diagnoses. 

Based on my 24 years journey with my cancer having multiple relapses there are no magic solutions to dealing with waiting for results….. at the moment you are a passenger on an unwanted journey. Try your best to keep doing the things you normally do, distract your mind as best as you can and you will just have to deal with what ever comes along when you get clear results.

Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer type journey can help a lot.

The Community is divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Bowel (colon and rectum) cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

To connect in with the group click on this link> Bowel (colon and rectum) cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support or just a listening ear.

We also have our Ask an Expert section but do allow a few working days for a reply.

Do get back to me if you need further help navigating the community but in the meantime all the very best.

Thank you for your kind words. I know I am not the only person going through this but it sure feels like it at times. I already feel like this group will help me along my journey. So good to know that you are all there for each other. I have already joined the group you mentioned so will have a look at the chats and support.

Your journey sounds like it is has been a physical and emotional rollercoaster but I feel the positivity in you words.

Keep up the good work.  (Is it ok to say things like that or is it patronising? Never know what you can and can’t say these days).

Thanks again and have a good day

I have had some bumps in the road but I am now coming up to 8 years since my last treatment so living the dream.

No your not patronising, it’s encouraging when folks thank the volunteers on the community who freely give of their time to make other peoples journey that more manageable.

All the very best regardless what way this all goes ((hugs))

Hi Scooter Girl.  I sympathise as I am in the same boat. I had and X-ray, had another 3 weeks later, sent off for a CT scan at The Royal Marsden under the 2 week rule. Then I had an appointment a couple of weeks after that to see a doctor but I had no idea what department it was for!.  I went along and was seen by a MacMillan nurse who gave me her card which says that she's a lung cancer nurse. She then sent me for a PET scan and a few days later called me to say that I could eaither: wait and have another CT scan in  3 months or have a biopsy. I called her to say I chose the biopsy. Before that I had to have a lung function test, another 2 weeks then I got the appointment for the biopsy. That was done 2 weeks ago and I am still waiting for the results. The stress and worry for such a long time is agonising!  Do you tell people, do you wait, do you go mad and let people think you are ging through some kind of breakdown because you just aren't coping? I'ts all a very slow long drawn out nighmare.  I wish you all the luck in the world xxxxx

Hi ElleCee

Thank you for sharing your journey so far.

I was clinging on the edge of the cliffs but am now free falling waiting to hit the bottom.

Your process seems to be going on forever and I hope you don’t have to wait too much longer for your results.
I decided to tell people after I was told the tumour definitely looked malignant. That was a tough decision as my parents are 81 and 94. I take them shopping and to all their medical appointments so needed to tell them as my appointments need to take priority at the moment, (and I feel really selfish about that). So my hubby, parents, sister and my close group of friends know which helps as I don’t have to put a brave face on in front of them. Although I am all smiles for my parents as I really don’t want them to know that I am losing it. I don’t like not being in control of things.

The waiting game is torture and I know I have good bad news or bad bad news coming. If I know at least I can have a plan.

I am so sorry that you are also going through this and that your journey so far has been so long and drawn out. It has been therapeutic chatting, would have been better over a glass of wine. Thank you so much for sharing and I wish you all the luck in the world. I hope you hear something soon so you can move on.

sending a virtual hug, take care xxxx