I have recently been diagnosed with malignant melanoma again 8 years after a primary and in transit (both stage 3C and BRAF positive) malignant melanoma
in 2015, I underwent WLE but wasn’t offered SNLB or immunotherapy
now it has recurred, I am really anxious and worried that this is metastatic from the original and not a new primary - My concerns seem to be disregarded
In addition to this I have also had 4 other lesions biopsied (2 last week and 2 the week before) and I’m being told to expect to wait 8 weeks for the results
Is anyone else in a similar situation?
Hi Nene23 and a warm welcome to the Macmillan Community but I am so sorry to hear about the recurrence of your Melanoma….. I understand the feeling as I have relapsed with my blood cancer many times over my 24 years.
This is such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Melanoma support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with the group click on this link Melanoma then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
Happy to help you Nene23 and well done putting up your post in the group.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
All the very best.
