Glad this group is here as I could do with a bit of support. Also hope I can help with some insight though I’m relatively new on this journey.
At time of writing I’m just over 7 weeks post nerve-sparing robotic prostatectomy. I was diagnosed Gleason 7 following a biopsy. Gave a blood sample for PSA two days ago - no results yet.
Overall I’m doing well. I’ve been back at work in my private psychotherapy practice since day 10. Living a relatively active lifestyle. Built up to jogging roughly 3k two or three times a week for the last three weeks.
Of the two expected after effects, I’m struggling more with the incontinence. While I’m aware that statistically speaking it’s very early, I often feel undignified and pessimistic and get a bit preoccupied with it. I have good days and not so good. Good = 3/4 Tena level 2. Not so good = 6.
With regard ED I’ll just say there are signs of life and leave it at that…
Hi Redmonkey63 and a warm welcome to the Macmillan Community but I am so sorry to hear about your diagnoses.
The cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
I do see that you have already joined our dedicated Prostate cancer support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with a group click on this link Prostate cancer then once the group page opens you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
