On 1st August I got diagnosed with linitus plastica T4a M0 M1
The CT has shown thickening of the entire stomach consistent with features of linitis and peritoneal disease in the pelvis .
I have been informed this not curable / retractable
I have been told I have months but still unsure of the stages I will be expecting to go through.
I am considering palliative chemo but unsure if I am going to proceed
At moment I am well although losing. So changed diet to high protein high fat to avoid bulky food
Has anyone else got this type of stomach cancer
Thankyou
Hi Quirky Lady and a warm welcome to the Macmillan Community but I am so sorry to hear about your diagnoses. The cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Stomach cancer support group and you may also want to look at our Living with incurable cancer - incurable patients only (Please join the group but for everyone's safety this will then have to be approved by the Macmillan Community Team so will not happen immediately) support group. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with a group click on this link Stomach cancer and Living with incurable cancer - incurable patients only then once the group pages opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
