I had surgery 8 weeks ago remove a large lump from my scalp. It has been completely removed with an identified 6.8 mm margin, with a skin graft replacing the area removed. It has been identified as a soft tissue sarcoma. I am being referred to a specialist sarcoma team. No idea what to expect and really scared. Advice on what is likely to happen next would be appreciated.
Hi Merched and a warm welcome to the Macmillan Community but I am so sorry to hear about your Soft Tissue Sarcoma diagnoses.
The cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Soft tissue sarcomas support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with the group click on this link Soft tissue sarcomas then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
