Hi all,
My partner is ~30 and about to go through a stem cell transplant, for refractory Hodgkins, with LACE conditioning chemo starting Monday. Is there anyone here who has been through this treatment, or know someone who did, and could talk through their experience, how to prepare, what to expect (side effects. recovery,..), what to bring to the hospital etc.?
She finds it calming to know as much as possible what to expect and how the experience was for others
If you are willing to share your experience, please do reach out.
Thank you all and wishing you all the best, strength and sending support for what brought you to this forum
Michael
Hi MKBE and welcome to the Community and I am so sorry to hear about your partner. I am Mike and I help out around our various Lymphoma groups.
I don’t have Hodgkin's Lymphoma but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well especially as I have relapsed multiple times over my years.....but my Allo (donour) Stem Cell Transplant in Oct 2015 did it's job.... although I had to have 2 SCTs
I see you have actually already joined our dedicated Stem cell transplant support group..... putting up a post in this group is going to allow you to connect with others like myself who have navigated the SCT process.
There are many types of conditioning used and LACE is just one of them...... LACE being one of the more gentler treatments.
Put up a post in the group, copy and paste the text from this post and you will pick up support their...... the New to Community is like standing at the community reception desk.
