Hi . I’m new to the site . My husband has stage 4 small cell lung cancer . Diagnosed March 2023. He’s had 4 chemo sessions now finished and immunotherapy to continue . He just doesn’t seem to improve physically . His scans are good with tumours reducing and one disappearing . Immunotherapy is supposed to help him but he seems worse . Always asleep or tired . Very irritated. He says he can’t relax . He’s had various sleeping tablets but nothing seems to help . Has this happened to anyone else ? I’m at my wits end .
Hi tuesday and welcome to the Macmillan Community but so sorry to hear about your husbands diagnosis and ongoing challenges.
A cancer diagnosis in the family can be such a challenging and stressful time. I have a completely different type of cancer and gave had rather a lot of treatment including over 750hrs chemo and my Consultant told me that going through treatments like these was like doing a boxing match and a marathon every day over the months of treatments and this was done without any training.
Think doing the London Marathon without any training and you had to finish it as your life depended on it……. this is the journey your husband has been on so it dirs take a lot of time to recover…… but getting support from others who are dealing with the ‘exact same' cancer type and support challenges can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) and I do see that you have already joined our dedicated Lung Cancer support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same journey.
When it comes to the practical and emotional challenges of supporting family and friends you may also benefit from joining our Carers only support group where you will connect with others navigating the same support challenges.
To connect in with the groups click on the “Bold Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can put up your own post by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Do get back to me if you need further help navigating the community.
