Not sure where to turn

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Hi there, im new here and new to forums. Just looking for some advice. I was diagnosed with endometrial cancer in January 23. Im in my early 30s, no children and I’ve had problems with my womb and ovaries since I was 15. I had the scans and I had the tumours removed in February and had the mirena coil inserted as it was proven that this would reverse the cells. I was advised in 3 months time I would have my first biopsy. I had this done in June and unfortunately the coil hasn’t worked. There are some other bits as well but they have recommended I have a hysterectomy. I have agreed to this but I’m just finding everything really hard at the moment. My husband has been extremely supportive but I feel guilty on him about this as he has a high pressure job. I feel like I shouldn’t be upset and I should try and get on with things until the operation but I believe this is a life changing operation as I can no longer have children and I’m worried about other health issues. I just don’t know what to do or where to turn. Should I take some time off work? Should I just carry on? Any help or advise would be appreciated

  • Hi  and welcome to the Macmillan Community but I am so sorry to hear about your diagnoses and ongoing challenges.

    The cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.

    The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Womb (uterus) cancer support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect with a group click on this link Womb (uterus) cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.

    You can copy and paste the text from this post into your new post…… you can also scroll through other members posts and click “Reply” to get involved.

    It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • I would take so time of if you can so that you can process what is happening. Your own and your partners well being is important as you deal with this. I had my kidney removed in April this year went back to work after 7 weeks. Five weeks after being back it hit me what had happened I'm now having counselling. X Good luck with everything 

  • Thank you so much for your reply Blush good luck to you as well!