Hi everyone,
I was diagnosed with low grade b cell lymphoma a few weeks ago. I wanted to say hello to this community - it's taken me several days to pluck up the courage. Being able to say the words ' I have a cancer' was far more difficult than I thought it would be. Am on a watch and wait but will have to think of a different word to 'wait'. I'm not waiting - I'm getting on with my life.
Anyway, hello everyone.
Hi Rosie OL and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.
I am Mike and I help out around our Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade Non Hodgkin’s Lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.
There are over 60 types and sub-types of Lymphoma so we can’t have a group for every type but I suggest you connect in with our General Non Hodgkin's Lymphoma support group.
This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
I will keep an eye open for you in the group and I will help you out further.
