Hi, I’m new to online groups and not really sure what to write.
I’ve been under investigation for the past few weeks for suspected sarcoma. The NHS has been amazing so far but I went to get my biopsy results last week and they’re not back yet.
I’ve been rebooked for another 2 weeks and the wait is so distracting. I can’t concentrate at work (my boss knows and has been great) but I’ve lost my want to do anything at home and I’m eating so much sugar it’s unbelievable.
I speak to my husband about how I’m feeling and he’s so supportive, telling me it’ll be fine either way, but I just can’t stop worrying. I don’t want to burden him too much as his mum passed away from cancer so I’m worried about brining up old worries for him. I haven’t told any friends or family or my teenagers because I don’t want them to worry, especially if it turns out to be nothing.
I don’t really know what I’m looking for by joining this group and posting. Maybe to not feel alone!?!
Hi Bookworm123 and welcome to the Macmillan Community but I am so sorry to hear about your ongoing diagnoses.
The cancer diagnosis journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Soft tissue sarcomas support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with a group click on this link Soft tissue sarcomas then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post…… you can also scroll through other members posts and click “Reply” to get involved.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Well done..... I do hope your get answers soon.
