Hi, I have a lot of questions about HCL.
I have HCL and I have been treated with Cladribine and I will be treated with Rituximab in 2 weeks. I have started having some issues in my skin. I have been reading that it can be because of the antibiotics. I have also a pain in my chest (probably my heart) and they are investigating it. Has someone else had this problems after Cladribine? And my last question, how are you doing after been treated? Can you have a normal life?
Thank you
Hi Mary08 and welcome to the Macmillan Community but I am so sorry to hear about your diagnoses.
The cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated CLL, SLL, HCL support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with a group click on this link CLL, SLL, HCL then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You can copy and paste the text from this post into your new post.
You can also scroll through other members posts and click “Reply” to get involved.
I have lived with and been treated for a rare blood cancer for over 24 years and help look after our Blood Cancer groups so I will keep an open for you in the HCL group.
Do get back to me if you need further help navigating the community.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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