Hairy cell leukemia

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Hi, I was just wondering if anyone else is living with this? I was diagnosed 4 days ago having had blood tests for an unrelated matter and started chemo today so it's all quite a lot to take in. I'm just reaching out to say hi and see if anyone else cam let me know what their experience is (I know that no two people will experience exactly the same but it would be good to be able to chat to someone else who understands). 

Thank you for reading. 

  • Hi  and welcome to the Online Community but I am sorry to hear about your diagnoses.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated CLL, SLL, HCL support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you. I've joined the group you recommended and thanks for pointing me in the right direction.