Hello this is my first post.
My husband was diagnosed with bowel cancer last Oct. He had surgery in Jan this year and started both oral and pill Chemotherapy. He was T4 N2 M0 before surgery. After 6 of 8 cycles of chemotherapy we thought he had a Incisional hernia. He has had almost constant pain since diagnosis. There was a huge abscess surrounding the tumour. We have now unfortunately discovered that the suspected hernia is in fact another huge tumour now growing into the abdominal muscle wall and bowel. They have recognised that chemotherapy hasn't helped at all and switched over to immunotherapy. The new cancer is too large to operate on ( at the moment. Fingers crossed it shrinks with treatment). I have two beautiful children who have their own problems. My son 22 has spherocytosis and my daughter is deaf. So Life is not straight forwards anyway. Now they have told me my husband has Lynch syndrome. Which means my children have a 50 % chance of having Lynch syndrome as well. If they do have Lynch they have a 60% chance of having bowel cancer and my daughter has an added 40% chance of endometrial cancer as well.
Just to add to the stress my wonderful father was diagnosed with Mesothelioma ( asbestos related terminal lung cancer) in 2021. I have been his carer as he was also blind. Sadly he lost his battle with cancer, under the wonderful Ellenor Hospice at home last week.
I feel like everything is falling around me yet we have to stay strong. I am now trying to balance my daughters second hearing implant operation, organising probate and a funeral for my darling father and caring for my wonderful but very scared husband.
Wow just typing this all out seems surreal.
I really don't know how to keep going on yet we all do. One day at a time. Small things that make us smile.
Is anyone else dealing with Lynch syndrome and the repercussions on the family?
Love to you all
Seal pup
