Hello
I am newly diagnosed with HER2 positive Er+breast cancer and waiting for my oncology appointment to start chemotherapy.
The journey began whilst on holiday in Spain where initial investigations took place. I returned home knowing I had breast cancer with nodal disease in my axilla but had to go through all the investigations again. So here I am 5 weeks later still waiting for my initial oncology appointment.
I understand the need to have all the results to hand before treatment is decided but now having to potentially wait another 2 weeks to see an oncologist seems ridiculous and an unnecessary stress on me and my family. The nhs cancels appointments on a regular basis so why not make an initial appointment during the testing period, then cancel if that speciality isn’t needed ( surgery V oncology in my case )
Remaining positive and continuing exercise as before my diagnosis to give me my best chance
Hi Susigriff and welcome to the Online Community but I am sorry to hear about your diagnoses. Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Breast cancer support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join the group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
