Hi I am new to this my partner has just this week been diagnosed with terminal cancer. Feel they are now getting good support which is how it should be as they have been in terrible pain, which has broken my heart that they are only now helping them with this. I certainly do not want to put my worries questions onto them. But hey I am in this journey also and deserve some help also as I have felt such a varied amount of different emotions this week. I made the choice to go into work as thought it would help me, which it has but its been a rough week, they been good and I have explained the situation. Guess some of them do not even know what to say, but that is okay. Even a hug is good. Its been a really tough few months, knowing how much pain my partner been in. The fact they were not listening and have actually been very slow in doing, but hey I get this the NHS is stretched to the limit. Hopefully now we have turned a corner! How its impacted on every area of our lives. I want to make the time that we have together special. I do have some specific concerns , how do I go about getting information? I know there is a Macmillan hub at the local hospital do I go there? Anyone any ideas to help me please?
Thank you guys for taking the time to read my message.
Any help is greatly appreciated.
Midnight 53
Hi Midnight53 and welcome to the Online Community but so sorry to hear about your partners diagnosis. A cancer diagnosis like this can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.
The Community is actually divided into Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting family and friends you may benefit from joining and posting in our Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the exact same support challenges.
To join a group first click on the “Bold Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
